PReS-FINAL-2051: The difference of disease's perception by JIA patients and their parents: analysis of the JAMAR questionnaire
نویسندگان
چکیده
Methods We included 100 consecutive JIA patients-parents pairs; the patients had a median age of 13.1 years and a median age at onset of 7.7 years. The male-female ratio was 1:2.7. The diagnostic distribution of JIA was: 35 enthesitis-related arthritis (35%), 39 oligoarthritis (39%), 14 polyarthritis RF negative (14%), 1 polyarthritis RF positive (1%) 4 systemic (4%). For each patient the JAMAR was filled separately by the child and one parent just before the consultation. We analyzed separately the different components of the JAMAR.
منابع مشابه
The difference of disease perception by juvenile idiopathic arthritis patients and their parents: analysis of the JAMAR questionnaire
BACKGROUND The JAMAR (Juvenile Arthritis Multidimensional Assessment Report) has been developed to evaluate the perception of the patient and his parents on different items: well-being, pain, functional status, quality of life, disease activity, disease course, side effects of medication, therapeutic compliance and satisfaction with illness outcome. Our aim was to compare disease's perception b...
متن کاملThe Mediating Role of Self-Efficacy in the Relationship between Perception of Parents\' Behavior and Resilience in 4-6th Grade Students in Isfahan
Internal aspects such as self-efficacy and self-esteem and external ones such as the quality of parent–child interactions are among the most important factors affecting the formation of resilience. This study sought to investigate the mediating role of self-efficacy in the relationship between perception of parents' behavior and resilience in 4-6th grade students in Isfahan. The research design...
متن کاملA Retrospective Analysis of Duodenal and Jejunointestinal Atresia-Five-Year Experience from a Tertiary Care Paediatric Surgery Center in Western India.
Background: Intestinal atresia is a life-threatening problem requiring early active intervention. The aim of the study was to compare management outcomes between Duodenal-Atresia (DA) and Jejunoileal-Atresias (JIA). The secondary objective was to analyse tapering enteroplasty versus end-to-end anastomosis in JIA. Materials and Methods: Retrospective descriptive analysis of patients operated be...
متن کاملDevelopment and initial validation of the parent acceptable symptom state in juvenile idiopathic arthritis (JIA)
Methods 369 parents completed a multidimensional questionnaire (the JAMAR), including Juvenile Arthritis Functionality Scale (JAFS) (score 0–30), Pediatric Rheumatology Quality of Life (PRQL) questionnaire (score 0–30) and traditional JIA outcome measures, and stated whether they considered their children's status satisfactory or not. PASS thresholds were estimated based on parent opinion and t...
متن کاملThe Correlation Between the Mental Health of Children With Cancer and Their Mothers
Background and Purpose: Childhood cancer can affect the adjustment of children and their parents, especially their mothers. This study aimed to assess the correlation between the general health and illness perception of mothers of children with cancer with the quality of life of their children. Materials and Methods: This research was a cross-sectional study conducted on 100 children with canc...
متن کاملذخیره در منابع من
با ذخیره ی این منبع در منابع من، دسترسی به آن را برای استفاده های بعدی آسان تر کنید
عنوان ژورنال:
دوره 11 شماره
صفحات -
تاریخ انتشار 2013